𝙰 𝚏𝚒𝚟𝚎-𝚢𝚎𝚊𝚛-𝚘𝚕𝚍 𝚐𝚒𝚛𝚕 𝚠𝚒𝚝𝚑 𝚊𝚗 𝚒𝚗𝚌𝚞𝚛𝚊𝚋𝚕𝚎 𝚗𝚎𝚞𝚛𝚘𝚍𝚎𝚐𝚎𝚗𝚎𝚛𝚊𝚝𝚒𝚟𝚎 𝚍𝚒𝚜𝟹’𝚊𝚜𝚎 𝚍𝚒𝚎𝚍 ‘𝚌𝚘𝚖𝚏𝚘𝚛𝚝𝚊𝚋𝚕𝚢’ 𝚊𝚝 𝚑𝚎𝚛 𝚆𝚊𝚜𝚑𝚒𝚗𝚐𝚝𝚘𝚗 𝚑𝚘𝚖𝚎.
Julianna Snow, who told her parents she would rather go to heaven than back to the hospital.
suffered from a severe form of the rare condition Charcot-Marie-Tooth D!sease and could not walk, eat, or even breathe on her own.
Julianna despised it.
Most children scream and need to be restrained during the procedure, but Julianna was eventually too weak to do anything but cry, her nurse Diana Scolaro who often performed the procedure said.
She remained conscious for each one, feeling every second of pain.
After each session, Scolaro would tell Julianna, “Rest now, baby. Maybe you can make it two hours before we have to do it again.”
In May, Julianna’s mother, Michelle Moon, shared the family’s story on The Mighty, a digital platform for people facing disease and disability.
With the grim knowledge of what Julianna’s future could look like, her parents decided to offer her a choice.
“Julianna made it clear to us that she does not want to go to the hospital again,” Moon wrote of her then 4-year-old daughter. “Like so many kids who have had to face life-threatening illness, she is wise beyond her years — but she is still only four years old.”
In the post, Julianna asks whether her brother will join her in heaven, and Moon tells her that most of the time people have to go to heaven alone and wait on their family to join them later.
The post received a mixed response with some voicing their support for Julianna’s parent’s choice and others questioning their decision.franks.com.mt/product-category/brands/calvin-klein
Unbelievable that any parent would think a four-year-old is able to understand or make a decision on life.
What can you say about this?